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Looking for some help/support.

My 9yr old daughter has been diagnosed with Alopecia. Large area's are affected and its getting difficult to hide.
I'm abso gutted and she is taking it really bad and continually questions why it had to happen to her..

We have been given some steroid based cream to massage into the affected area's. we go next week to look at potential hair accessories and the likes.

Anybody support would be appreciated.

Sorry to hear buddy. Unfortunately know nothing, but giving you my one time that things get sorted.

Stay strong.

Saw this thread, and instantly thought of this

YouTube: http://www.youtube.com/watch?v=YLibAF1IsZM

Very uplifting story.

Stay strong, remember that anyone can make it if they believe it enough, and when you do, it's damn well worth it.

Really sorry but I also know nothing, but best wishes from the fish family ...
Only thing I can suggest is a few treats especially fashion hats.

Chin up kiddo xx

Sorry to hear this, hope things can get better for your daughter, stay strong buddy x

Depending on what you/she wants to do, there are some excellent wigs available.

Hope she's ok.

Think Simon Trumper suffers from alopecia.

Hello mate,

I remember the TV presenter Gail Porter making a documentary on this as she has suffered from Alopecia for years now. Maybe have a watch and if it's an uplifting story watch it with your daughter?

There is also The Little Princess Trust/Foundation (I forget which) that helps young kids who suffer from hair loss or have had chemo etc and provides wigs etc.

Must be so hard for her to handle as a young girl, hope shes ok.

GL

http://www.littleprincesses.org.uk/

man that really is tough for her, best of luck getting help and supporting her.

i didn't watch this clip this morning (it was early and i didn't want to wake everyone)

but Ive just been so touched by it ...i wanted to post again

hopefully things will work out for her and it wont be too upsetting for you all
xx

Olympic cyclist Joanna Rowsell suffers from the same condition. If your daughter is into sport & wants some inspiration get in touch with her, she's on twitter @JoannaRowsell

All the best.

That totally sucks Davie hope it goes okay if there is anything I can do to help let me know.

Kids can amaze you with their resilience and she has already had to deal with having you as her dad so she is clearly made of strong stuff... :)

{{{{{Hugs}}}}}

That's horrible Davie. Hope it gets sorted soon but she finds the strength to deal with it in the meantime.

Hey Bud
Got home today and spoke to Petra about this and she reminded me we watched an episode of "Food Hospital" that had an Alopecia sufferer and some dietry changes improved the condition from recollection.

Found the episode and hope it helps

http://www.channel4.com/programmes/the-food-hospital/4od#3442981 (http://www.channel4.com/programmes/the-food-hospital/4od#3442981)

Hope things turn out well mate...I know you will be strong for her

http://www.alopecia-awareness.org.uk/alopecia/

Really appreciate the warmth in this thread.
Will keep updating with progress and I'm sure we will get through it. Olivia is a tough
Cookie and as Eck pointed out she has me as a Dad.  :D ;whistle;

Thanks to everyone of you who has posted on here. It means a lot.

This type of thread is what Blonde is about.

Please try and get in touch with support groups

I think one was linked to earlier in the thread

One of my lads has Aspergers and has difficulties in a few areas. One of these for example is that you can give him an exam essay question and a blank answer sheet and his mind goes blank. Conversely he can get A grades in Maths and Science subjects without ever having looked at a book.

GCSE time, at the moment, is a rough few weeks, to say the least, in hte difficult subjects.

We began to go to a support group on Saturday mornings and this had a few effects

a) It helped him see that he wasn't on his own, that other kids were going through various things too. I'm only guessing but I think this would be important for a young girl with a lot going on in her head as she adjusts to all of it

b) As a parent it helps you talk to others in the same situation

With both, friendships can ensue.

The doctor or specialist will have all the details of local organisations to you that can be there if you need them.

I know it's easy to say, but when it comes down to it, I'm sure both you and she will cope very well.

It's amazing how resilient people can be when they have to, and good strong parent / child combo's are the toughest of all.

I'll drop you a PM in the next day or so if that's OK.

xx

+1 to using Support Groups.

A very good friend of mine has a son who has a few problems, & Mum & Dad were devestated, did not know how to handle it or what way to turn.

They got involved with a Support Group, & it has made the world of difference, both to the boy, & the parents.

No problem Tom.

My sister has it. At first she was devastated, mainly thinking negatively about how everyone would look at her. But now, she treats it as a feature rather than a problem. She has come to terms with it and is perfectly happy.

I just know how devastated my wife was when my daughter got a chicken pox scar on her face last year..My daughter is fine with it, often its the parents that can't handle it or adapt!

My kid brother had quite bad Alopecia during his teenage years. The more he worried the worse it got, until it must have got to a stage where he thought, it was as bad as it could get. At that point he started to cope with the stress of it, and then it started growing back.
Now in his mid forties, he still has a full head. He gets the occasional bout, but all stress related.

I know that he a bloke and probably doesn't help none, but it can and does go in time.

Good luck to her.

Big Day Tomorrow.

Off to visit the Hairdresser for potential wigs.

officially my 1 time..........

Good luck Davey.

Save the one time.  Reckon she'll be well looked after.  They'll treat her like a proper princess and so they should.  xx

wee update.

We have had the wigs from Little Princess and have really helped.
The Hair is starting to grow back but its going to take a while. She has been fantastic and im soooo Proud of the way she has handled it.

Onwards and upwards.

good to hear...all the best to her.

Glad that it's turning out ok and she's handling it well.

Fyp

Only just found this thread.

My daughter also has occasional alopecia. It has never been really bad as yet, but she always has a small bald patch somewhereon her head.

I think I probably worry about it more than her.. when we first found it it was a pretty big deal for her but obviously I really played it down. Luckily her group of friends are all a good bunch who have been her mates all the way through school (she's 17 now). This meant that when she had her first really obvious patch, she simply told people what it was and it was treated as pretty unimportant because of how she approached it with people.

I appreciate your daughter is younger and will find it harder to understand but all I can suggest is trying to keep it as low key as possible, and making her realise it really isn't such a bad thing.

I know I think about it a lot and whenever she gets a new patch I have a secret cry but because I make light of it in front of her and her peer group don't take the piss at all, she just doesn't give it a second thought now.

Dunno if that's any help whatsoever but just wanted to add my personal experience as a mum x

fyp

I got an alopecia patch earlier this year for 3-4 months as a result of a medication side effect, made me so self conscious initially, and I've never been arsed about my looks frankly. So for a girl to get this I can imagine must be a big deal. What made me feel better at the time was having good family and friends around me who just accepted it quickly. The impact is only as great as you allow your self esteem to be affected by it.

Good to hear her hair is growing back! My advice to anyone who has a friend or family member with this is just to treat them normally, let them know it doesn't affect how you feel about them, and it'll help them to adapt so much easier.

sorry my bad. Ty

Update!!!

We have Olivia's party tomorrow night. We promised her a Party when her hair started growing and used this as an incentive for her to keep focused and something to look forward to. Its a Little Princess Charity night and we have loads organised.

Tumbola with 70 Prizes
Raffle with 30 Prizes ( all donations)
An Auction with 5 Items. (Hospitality type stuff.)
Photo Booth
Magician to do some Close-up Hand magic
x Factor Singer. (He got to the TV Stages.)
DJ
140 Tickets Sold. The Hall holds 120.....

Hopefully we can make a lot of Money and say Thanks for all the Help and support they have given Olivia and the Family.
I also have a 25/25 ticket from Grosvenor that I will play and any Money (in before None) won will be given to the Charity. Will probably put up a small request for Buy in for a couple of Local live tourney's which will all be going to the Charity.

Would also like to thank Cos/Tikay and all other Blondes who have given support and guidance on this Thread. I truly does help so much when people take the time to Comment or Chat via Skype and the likes. Really Really appreciated. This is what makes Blonde Special and unique!!!.

Thanks for Everything
Olivia and David, x

Good luck tomorrow.

You doing a live blog on it? :)

Defo Photographs.

gl mate, hope it all goes well

Thanks Dan.

Soooo Proud!!!

We managed to raise £1,700 for the Little Princess Trust. We got 160 people into a Hall that holds 120!!!.
Couldn't have done it without Friends and Family. Love to them all.

Olivia had a Fantastic night and loved being the STAR. Her Speech was brill..

Just Brilliant!!!!!!!! x

That's a great effort from you all, well done!

Glad it went well.  Look forward to the pics!

Good to hear that everything went so well, great stuff mate!

<3