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Author Topic: Reece goes away for Christmas. Again.  (Read 402470 times)
Dewi_cool
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« Reply #975 on: September 19, 2009, 06:07:02 PM »

Fkn awful I dont know what else to say. xx
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« Reply #976 on: September 19, 2009, 06:23:08 PM »

Poor little guy hope he recovers quickly.
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« Reply #977 on: September 19, 2009, 06:37:41 PM »


Sigh.

Good job he has such backbone. And Mo.
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« Reply #978 on: September 19, 2009, 07:40:54 PM »

Fkn awful I dont know what else to say. xx

+1    xx
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« Reply #979 on: September 19, 2009, 07:50:21 PM »

He is now at the shop with £5 in his pocket ( "only if grandad carries me cause see I have no energy because they starved me again") to spend on anything he wants. Earlyish night tonight then a good walk in the push chair tomorrow for some fresh country air. He is so quickly getting to that ...I dont want to go outside thinking again.

Stacey just said we really need to change hospitals so fingers crossed.
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« Reply #980 on: September 19, 2009, 08:33:53 PM »

what a palava. hope you get something sorted soon xx
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« Reply #981 on: September 19, 2009, 08:47:25 PM »

xx  xx
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« Reply #982 on: September 19, 2009, 08:54:03 PM »

Thanks all for the posts and pm's you really don't know how much they mean. xx
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« Reply #983 on: September 19, 2009, 10:06:13 PM »

I am sure that the love and care that you all give him will pull you ALL through this,

this journey is 1 that you have all been on together and you will see it through to the joyous outcome that Reece and all of you deserve,

yes it still will be a long and winding uphill battle but strength in numbers will prevail and you WILL reach the promised land

thoughts and wishes to you all enjoy yr sunday and take every day as the new challenge that it will be xxxx
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« Reply #984 on: September 20, 2009, 12:22:05 AM »

Will other hospitals in this country be any better? The nhs is a complete shambles with more money being wasted than would be needed to do thousands of operations. Absolute disgrace. 

This will give me some extra grit in tomorrows run.

The day out tomorrow sounds good though. Take care.
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« Reply #985 on: September 21, 2009, 11:44:51 AM »

Will other hospitals in this country be any better? The nhs is a complete shambles with more money being wasted than would be needed to do thousands of operations. Absolute disgrace. 

This will give me some extra grit in tomorrows run.

The day out tomorrow sounds good though. Take care.

Not sure Chris, but cannot be any worse surely.

Anyway, he ate like a horse yesterday but it seems he just isn't absorbing much of it. His weight last night was 13.1, the hospital failed to ring Stacey this morning like they said they were going to so he has gone into school as his community team want him to have as much normality in his life as possible and the school will ring once he gets too tired. Stacey called the hospital and spoke to Carol, Antoninos secretary, Stacey asked for the info Boston need but Carol has not exactly refused it but acknowledged the fact that Stacey is entitled to it but will not release it until Antonino returns as she want him to know first. Carol also said that Antonino would not want one of the surgeons to put the line in as they are not too good at it Huh??? why the hell are they doing the job then??? so she is going to get in touch with Antonino and seek advice. Whatever, have we not heard this before. The doctors are like bleeding infants there, just bitching on about who is better etc etc, you don't touch my patient, I cant touch yours. Anyway, lets see what today brings. Lets hope someone soon realises they are messing with a childs life here. This takes us back to last year when he was away and things went tits up, no one would touch Reece and he went so thin and ill, we were just left in house hospital waiting whilst Reece looked like a skeleton.

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« Reply #986 on: September 21, 2009, 09:58:45 PM »

When is the the Doctor due back?
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« Reply #987 on: September 21, 2009, 10:02:04 PM »

30th, We are in the process of setting up an appointment at Leeds, they are being contacted tomorrow. Reece already has a cold, we can not afford for him to contract anything major when his immune system is low. He has managed his first full day at school, no sleeps either but went to bed very early tonight.

The appointment will be just at first to see what expertise they can offer here.
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« Reply #988 on: September 21, 2009, 10:02:29 PM »


Taken today.

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« Reply #989 on: September 21, 2009, 10:18:09 PM »

X
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