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Author Topic: Reece goes away for Christmas. Again.  (Read 401990 times)
cia260895
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« Reply #675 on: July 07, 2009, 09:13:06 AM »

thoughts and best wishes to all of ya xx
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GreekStein
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« Reply #676 on: July 07, 2009, 09:25:51 AM »

Sigh, hope all gets better soon.
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« Reply #677 on: July 07, 2009, 09:36:36 AM »

Will be thinking of him.  He's a strong wee Lad, so fingers crossed for a speedy return home.  xx
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« Reply #678 on: July 07, 2009, 06:15:44 PM »

Darren, Stacey and Reeceyboy have been sat in A & E all day today, Reece's line came out completely this am, so no line, it did not bleed back so all is OK as far as that is concerned. As Antonino was in theatre he has only just managed to see him. We are gob smacked by his decision today, it goes some thing like this, he may not have a vein to insert the new line into so therefore it has been decided to send Reece HOME WITHOUT a line in, and be in constant contact with Antonino on his state of health. He wants to give him a go without one in but should Reece falter he will go back on Friday have an ultra sound on his main archery's  and take it from there. So this means Reece is experiencing a drop to 1 nights TPN this week. I do not see how he can do it myself, the poor lad is well suffering as it is. Anyway he is coming here for the next 2 nights as I am on rest days so will try and do our best to maintain his weight. Wish him luck please, this is a massive challenge for Reece, the only reason I think they are sending him home to test him is that with his restricted diet he will get more choice at home than  will be available in there for him.
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I KNOW IT
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« Reply #679 on: July 07, 2009, 06:21:30 PM »

Wishing all the best
love and kisses for the little fella xx
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« Reply #680 on: July 07, 2009, 06:22:17 PM »

Good luck to the little fighter
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« Reply #681 on: July 07, 2009, 07:03:34 PM »

Good luck to the little fighter
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« Reply #682 on: July 07, 2009, 07:05:20 PM »


I'm so sorry to hear all this Maureen, & I'm sorry I've not been on thread for a week or more.

Can you contiune to keep us updated, please.

What a battle this Lad is having, & how well he seems to cope with setback after setback.

When he grows up, he'll be a champion at something, because he has all the qualities of a born fighter, & winner.

x
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« Reply #683 on: July 07, 2009, 08:02:37 PM »

Thanks, he is home now and playing had a good stab at his Tea.
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« Reply #684 on: July 07, 2009, 08:48:03 PM »

Thanks, he is home now and playing had a good stab at his Tea.

that's good to hear.  Will be thinking of Reece this week. xx
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cia260895
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« Reply #685 on: July 07, 2009, 09:13:19 PM »

Thanks, he is home now and playing had a good stab at his Tea.

that's good to hear.  Will be thinking of Reece this week. xx

very much this
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« Reply #686 on: July 07, 2009, 09:22:01 PM »

Best wishes Maureen, fingers crossed. Pass on a huggle.

X
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« Reply #687 on: July 07, 2009, 09:37:54 PM »

Best wishes to you all, thinking of you, especially this week.
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« Reply #688 on: July 08, 2009, 10:23:06 AM »

Antonino called this morning to see how he is and after a little discussion it has been decided that Reece really needs to give this his best shot at not having TPN again, this is due to many factors, Antonino thinks it will be very hard to get another line into him and it is time to go for it so to speak. So there we go, this is the time we have all been dreading but at the same want so very much. Ideally it would have been better to slowly stop the TPN but now the line is out we have no choice. There are only 5 (I think) main veins that can be used before having to enter the chest cavity through the ribs, this is only done in extreme cases so we really want this to work because if Reece has no veins we don't want that to happen to him and like I said this is his 13 or 14th line. This is the longest Reece will have gone without a line as when he has had to have new ones he always went into hospital, had it removed then went on intravenous drips for a day or so until the new line was fitted, also it is the first time we have ever had him home with no line. He still has his gastrostomy in so we may have to try feeds through that if he starts to dehydrate.
 







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« Reply #689 on: July 08, 2009, 10:58:49 AM »

Crickey...best of luck to him.

All other words fail me, at the moment.
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