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Author Topic: Reece goes away for Christmas. Again.  (Read 401868 times)
The_nun
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« Reply #810 on: August 21, 2009, 08:02:34 PM »
Quote from: RED-DOG on August 21, 2009, 12:07:53 PM
That Car Park charge is scandalous.

They charge the hossie staff (Nurses, cleaners etc) the same rate. Bloody ridiculous


All the best Maureen xx
[/quot

Not sure if they do Tom bth they have a level to themselves with bagdes and rightly so. Anyway Darren has fetched him home on weekend leave until mon.  He is at Staceys tonight but is coming to ours tomorrow.  He is still on enteral feeds via gastrostomy.
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« Reply #811 on: August 24, 2009, 10:45:41 PM »
How's he getting on Mo?
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« Reply #812 on: August 25, 2009, 09:27:51 AM »
He had a nice weekend with us and has now gone back in hossy, his eating wasn't great as we are try a new feed into his gastrostomy but he has startred vomiting again so tonight Reece has to go back on TPN at first we are trying 4 nights to buiild him up as he was 13.6 on Sunday but with the vomits he shot down to 11.7 yesterday. 
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tikay
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« Reply #813 on: August 25, 2009, 12:50:11 PM »

Yikes, 11.7 must be a worry.

Please try & keep us informed Maureen.

xx
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« Reply #814 on: August 25, 2009, 12:58:43 PM »
I do hope he starts putting that weight back on soon Maureen, and then continues to do so.

I really am full of admiration for the little blighter.
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« Reply #815 on: August 25, 2009, 03:16:52 PM »
     “If children have the ability to ignore all odds and percentages, then maybe we can all learn from them. When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or Fight Like Hell.”


I think this Lance Armstong quote is very apt for this thread, get well Reece.
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« Reply #816 on: August 26, 2009, 07:22:51 PM »
Darren fetched Reece and Stacey home today, he had his first night of TPN last night but  the line in his arm is a struggle as during sleep it constantly sets his machines off due to elbow movement in his sleep causing downstreem pressure. But at least he is home. Still thinking about second opinions.
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The_nun
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« Reply #817 on: August 26, 2009, 07:26:06 PM »
Quote from: TheChipPrince on August 25, 2009, 03:16:52 PM
    “If children have the ability to ignore all odds and percentages, then maybe we can all learn from them. When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or Fight Like Hell.”


I think this Lance Armstong quote is very apt for this thread, get well Reece.

Nice post xx
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The_nun
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« Reply #818 on: August 29, 2009, 06:23:38 PM »
Just to let you know Reece is doing fantastic, OK,  so obviously he is back on TPN 4 nights, up to now he has had 3 nights but is thriving on it again, I think 3 nights a week ids ample but the hossy wants 4 so 4 it is. He is full of fun, his humour is back 100 %, wanting to play and walk plus thinking again, and on top of all that he is once again HAPPY. Bloody great to see him like this.
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« Reply #819 on: August 29, 2009, 06:26:00 PM »
great news xx
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« Reply #820 on: August 29, 2009, 06:28:14 PM »
top news ... long may it continue xx
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« Reply #821 on: August 29, 2009, 06:38:46 PM »
i love good news..,.keep it up.,.,.,
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« Reply #822 on: August 29, 2009, 07:21:14 PM »
Great news Maureen.

What's his weight now?
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« Reply #823 on: August 29, 2009, 07:41:48 PM »
Quote from: tikay on August 29, 2009, 07:21:14 PM
Great news Maureen.

What's his weight now?

LOL he is watching X factor with his Grandad, and just watched a lass from Tobago sing, he comment as true as I stand here was " She's not that good from the outside , but is very good from the inside " ..

Weight as of now 2 minutes ago to be exact, 13.2. and eating very well indeed, all sorts of stuff he is asking for.
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« Reply #824 on: August 29, 2009, 07:43:16 PM »
Just over 2.0786441863175997  stone
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