Reece goes away for Christmas. Again.

[boldie]

Best wishes to Reece from all at blonde. He won't let us down.

What TJ said.

[charmaine]

An awful lot for one family to go through for so long !! goodluck Reece and family xxxx

[RED-DOG]

x

[Harmony26]

Thanks very much for the update, Tikay.

Thinking of you all, Maureen.

B&H xxx

[DUNK619]

Best wishes to the wholle familyxxxxxxxxx

[kinboshi]

Best wishes to Reece from all at blonde. He won't let us down.

What TJ said.

Reece will come through it.  He gets his stubbornness from his Gran...

[celtic]

Best wishes to you all.

vince

[Wardonkey]

xox

[The_nun]

Thank you Tony for the update whilst I have not been able.

Thank you Blonde for the ongoing support.

 We all have been spending a lot of time at the hossy with him usually taking it in turns, 2 nights for Stacey, 2 for me then 1 for Darren (as he needs to keep up an income). Also when I am not sleeping we spend the day there too and just return home at night. I have just returned home from my 2 nights and believe me I feel totally.....  bleep..... Not so much the taking care of Reece but the lack of rest. You see this hospital will close next year to be relocated to a brand new one, so to say it is dated is an understatement. Over crowding is a big issue, noise levels at night are terrible, last night was possibly one of the quietest nights I have spent on a ward since Reece was born and I managed around 2 hours kip. There are all races on these wards so there are many different cultures,  we all  tend to have a different way of life so even though visiting is all day to 8 pm  some people do not turn up 'till 8 pm due to religious prayer times etc. and tend to stay a little later which can cause problems with sleep patterns. Resulting in being totally knacker-ed the next day, but yey how do these people sleep all day through general ward noise.., whoosh.

Anyway, Reece once again has proved a bloody miracle, he has now had a bowel movement or two , not solid but it never has been , but he has at the end of the day got a bowel armed with approx two thousand stitches to start functioning. He also has had his NG tube removed and we are asperating from his gastrostomy when he feels discomfort but we do need this to reduce in levels. He is still on 24 hour TPN and replacement fluids, he is only used to being wired up to machines for 12 hours per night so this is a pain. He is walking easily already which was not expected at this early stage, playing like any other child and hardly complaining about his pain which everyone involved is very impressed with.

As Tony said the two next major steps are 1, Getting him to eat, Yesterday he was allowed to drink which he did after we removed the NG, but the eating is going to be so hard as he has never had to eat, only the odd nibble here n there. It looks like a very special diet, no wheat, gluton dairy etc. Now as most of you know getting a 3 yr old to eat what you want them to is hard never mind one that has never ate.

2, Getting the bowel to absorb nutrients from the food.


You see TPN gives him all he requires, he hardly feels hungry or thirsty on it, suppress the appetite, but we can not reduce the TPN until he eats and he will not want to eat until TPN is reduced as no hunger. Hard..yes it will be a long road but hopefully a chance of near normal life which this time last year we would not of dreamed of.


Regards Maureen.

[bobby1]

Thats great news, cheered me up no end that, thanks and good luck mate.

[boldie]

Thats great news, cheered me up no end that, thanks and good luck mate.

What he said..great stuff!

[Colchester Kev]

Theres a Colchester cuddle here with your name on it ... you can pass it on the Reece xx

[The_nun]

Oh btw, one has to sleep in a very aged hard semi reclining chair. Which when you move a tiny bit reverts to upright position. I was up n down all night. YES YES first time in ages b4 anyone of you say it.

[Colchester Kev]

Theres a Colchester cuddle here with your name on it ... you can pass it on to Reece xx

[The_nun]

Theres a Colchester cuddle here with your name on it ... you can pass it on to Reece xx

This will be passed on and gratefully received. xx Oh and tell Ginger to reserve a seat for me at the toffee flavoured table.