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Author Topic: Reece goes away for Christmas. Again.  (Read 400174 times)
sofa----king
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« Reply #240 on: May 15, 2008, 06:44:38 AM »

this little boy dont half put things into perspective.,.,.,.,.,.,

(im worried about the trailer for the jet skis being fixed for the weekend) there are much more important things in life.,.,.,.,.,.,.,.,.

i love reading this little boys updates.,.,.,you know what,,,,my wife asks after him,,,,my mum and dad have asked.,.,.,how he is,.,.,and now my sister knows who this brave kid is, and asks after him.,.,.,
no one has asked about the trailer for the jet skis lol.,.,.,.,keep it up REECE.,.,.,.,.,
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« Reply #241 on: May 16, 2008, 08:09:46 PM »

We picked Reece up at 11am and came home via Asda. Reece tootled off to his favorite place, the DVD section whilst I shopped. A lady that worked at Asda took a shine to Reece, she was impressed by his knowledge of the section at such a young age. She told Darren that she is not really into children but for some unknown reason felt drawn to Reece, she thought him a right character. Darren went on to briefly explain why Reece is so into DVDs, she then purchased a gift for him, a collection of Thomas Tank books. How nice are some people, total stranger had no need to even chat let alone give him a gift.

He has had a great day, eating is coming along nicely but I am struggling to get him to eat veg. He now knows what hunger is and tells us he needs food to fill his tummy and make his muscles grow like Grandads, cough cough splutter splutter. He is also putting weight on which is a very good sign as his volume of TPN has been reduced again. It feels like I have missed doing some of his cares as at the moment he is totally free of med's, all I have to do is put him on his TPN at night, it is a doddle compared to what I am used to doing, which took up every spare minute really. So it is nice to just enjoy having an almost normal child for the 7 hours he is free of his machines. It is also great now he has got rid of 2 of the tubes from his tummy. All he has now is his Gastrostomy, which we are giving him a small special milk feed over night through and his central line.
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« Reply #242 on: May 16, 2008, 08:15:01 PM »

He has had a great day, eating is coming along nicely but I am struggling to get him to eat veg.

Sounds like a normal toddler to me Maureen. Smiley

Great news that everything is going so well xx
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« Reply #243 on: May 16, 2008, 08:17:51 PM »

Your truly amazing Mo, what you guys go through on a daily basis puts most mundane problems into perspective. I hope all's well in the Nunery and Darren and Stacey are ok. Love to all x x x x x
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« Reply #244 on: May 16, 2008, 08:20:43 PM »

Top stuff...great to hear he's doing soo well.
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« Reply #245 on: May 16, 2008, 08:21:49 PM »

 
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« Reply #246 on: May 17, 2008, 04:27:02 AM »

Sounds like the wee man is doing great 
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« Reply #247 on: May 17, 2008, 04:51:51 AM »


The best Progress Report on Reece ever. Ever ever.

Thanks Maureen.

And don't be making him eat veg. It's not good for him.
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« Reply #248 on: May 17, 2008, 09:29:57 AM »

Fantastic news Maureen.
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« Reply #249 on: May 17, 2008, 11:51:38 AM »

Best news anyone could wish for , so pleased for you all especially Reece  Smiley
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« Reply #250 on: May 18, 2008, 03:31:29 PM »

We're so delighted to hear this news and hope you all have a wonderful weekend!

B&H xxx
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« Reply #251 on: May 18, 2008, 03:49:45 PM »

would have loved to have seen his face on the jet skis lol.,.,
great news mo you should change yours and darrens name to mr+mrs nun angel.,.,.
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« Reply #252 on: May 18, 2008, 06:28:17 PM »

would have loved to have seen his face on the jet skis lol.,.,great news mo you should change yours and darrens name to mr+mrs nun angel.,.,.

Hopefully one day.
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« Reply #253 on: May 18, 2008, 06:29:29 PM »

Hope you've enjoyed the week-end together.  xx
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« Reply #254 on: May 18, 2008, 06:33:31 PM »

Fantastic Laxie.

We actually did something today that we haven't been able to do with him. A thing that most take for granted but we loved it, we wentto bed after doing the garden for 2 hours, all three of us in our bed. No worrying about meds, or needs, it was such a great " normal " feeling.
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