Reece goes away for Christmas. Again.

[redimp]

Fantastic news,we shall be thinking about the little fella next week.
I'am sure he will love it.
xoxox

[The_nun]

Long time coming I know and sorry for the delay as so many people have asked for an update.

Reece started play school and attends three times per week for 2 hours a day. He does enjoy it once he is there but prefers to go to Grandma and Grandads. He doesn't cry just lets you know he will stay for a while but that's it.

Health wise. Today we had a casual meeting with Antonino and Lynette, his dietitian, they ar always casual as that is how Antonino is. He now weighs in at 13kg's, so there has been a slight increase in weight but saying that his bones and height are growing too. Antonino is very pleased with him. For every 5grams of fat he eats we have to spoon some little tiny balls into him via a yogurt to try and get his body to digest fat. We also inject via his gastrostomy 20 mils of a fat med three times a day.

He is now successfully off TPN 3 nights a week and next week sees our first attempt with two nights consecutively, which is the next major major step in his transition to a normal life. At the moment he has Mondays Wednesdays and Fridays. Next week he will have Sunday night off at home then we will take him and Stacey into hospital on Monday and they will assess him in preparation for not having it that night. If he copes this will continue for the next 3 weeksish then he will drop his 5Th night. It is anticipated that by December he will be free of machines. I can only dream of this happening, whilst trying to stay positive I also don't want that big slap in my face, I just don't think I could cope again, so I am trying to be level headed about it. Stacey got quite excited today by the news, her eyes lit up.


Overall Reece is well ahead of his years, he knows and understands so much it is at times scary to hear him talk of adult things that he really,  in his young years should not have to think about. His  sense of humour is second to none and loves to sing and make you laugh. We have been so gifted to have Reece in our lives, just looking at him brings tears in my eyes on so many occasions.

We took Reece to Drayton Manor and I am now trying to post some of the pictures.

Thanks all for the continuing support.

Maureen.
 

[Claw75]

thanks for the update Maureen - sounds like he's doing great xx

[tikay]

It is anticipated that by December he will be free of machines

A true miracle.

How is Darren now? And you?

xx

[The_nun]

We are both fine, apart from the knee on the leg that didn't get broke, it clicks all the time and keeps giving way possibly from the strain of taking the weight a lot during the break. We are also getting over the way the offenders were in our eyes let off so to speak. Anyway you, 3 months since you said you would be visiting when you returned from Vegas, tea's turned to Iced tea  Leave it much longer and it will be his wedding next time you see him.

[Laxie]

Sooooooo glad he's doing as well as he is!  Thinking of ye all the time.  xx

[Dingdell]

Fingers crossed Maureen xx

[tikay]

We are both fine, apart from the knee on the leg that didn't get broke, it clicks all the time and keeps giving way possibly from the strain of taking the weight a lot during the break. We are also getting over the way the offenders were in our eyes let off so to speak. Anyway you, 3 months since you said you would be visiting when you returned from Vegas, tea's turned to Iced tea  Leave it much longer and it will be his wedding next time you see him.

Ugh, sorry Maureen, you are right, I did promise. I'm so disorganized, it's untrue.

I planned to write to you & thank you for getting us out of the poo by doing the DTD Live Update, but I thought I'd better read the Update first, so I knew what I was talking about, rather than just paying lip-service. Bt I've not even opened it yet....

One of these days I'll get up to date. I'm sorry, no excuses for not coming up to see you all really.

[The_nun]

.

[The_nun]

Pic's are too small doing it this way. I will have to make an album I think when more time.

[The_nun]

.

[technolog]

Brilliant news Maureen! The pics are great too.

[Tonji]

Brilliant news Maureen! The pics are great too.

+1

Its lovely to hear of Reece's progress 

[cia260895]

Great news,great pics keep it up...

[sofa----king]

great news mo.,.,anychance of you booking flights i will book a 5 star villa for you whenever you are ready to fly to cyprus,.,.all you need is flights,,,