Any advice appreciated

[tikay]

Suzanne, I don't do Christmas, or the cards & pressies nonsense, but I'll be thinking of you over Christmas, & I do so hope it's a pleasant & peaceful time for you all.

[Dingdell]

Blonde Poker is predominately a Poker Forum.

But more then that, its a Community Forum where everybody can come and talk about all things in general, thats why we have the LOUNGE now so we can chat about things OTHER than poker.

It helps to get things off your chest, so please Suzanne

KEEP POSTING

Absolutely right. 

[suzanne]

Thanks Tony ..I hope you have a quiet and profitable xmas too xx

CIA do you mean this one?

http://www.amazon.co.uk/Need-Talk-About-Kevin-Paperback/dp/1852424672/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1198307616&sr=8-1

Coz if it is im not sure I want to go there :-(

I laughed at the description of your son diving head first into a cereal mountain  but im sure it wasnt funny at the time.

I have many stories I could tell and I only wish I could have done a blog back then..it would be really interesting to read back on it now. I didnt keep a diary either as I really didnt have the time which is a shame.

A couple of scary moments that come to mind...when she was about 3 we were staying in a caravan park and the leisure centre had a wacky warehouse type place, not sure what happened but she was right in the middle and just flew at this poor kid and was kickin the livin daylights out of him..he was double the size of her too and im sure the sight of me struggling to get though small holes and climb rope ladders must have looked hysterical..i got stuck between two foam cones on poles and had to be pulled out by some bigger kids :-(

She bit a guys hand so badly he was bleeding when he only tried to help her when she fell.

I think the worse/most stressful time was again when she was 3/4 years old. Since living in Spain when I was younger I made a point of going back at least once a year so the kids were used to flying from an early age. Even tho I split up from my ex when she was a baby I invited him along so he could have some quality time with them.. but we had fallen out big time and he wasnt invited on this or any other trip after that so there was just me, the 3 kids and my mum...the holiday was doomed from the start.
We got to the airport and discovered my mum had left her passport at home..only option was for her to get a taxi home and back and the driver to put his foot to the floor along some very narrow twisting roads, it was doubtful he would make it but it was worth a go. Luckily there was some really big England football match on at the time and the roads were deserted so he made it back in time ...just!!!
We were rushed onto the plane at the last minute and I could see as we walked up the aisle that the air hostess was unfolding the seats by the emergency exit for us as the plane was jam packed with no spare seats.
"Quick" she said as the plane was already moving."Please sit down and fasten your seat belts"..as soon as I saw the seats I knew she wouldnt sit..there was a slight gap between the back and the seat base..only maybe a centimetre but light was shining through it and one look at Megan told me all I needed to know. "Look after Adrian" I said to my mum (who was already very stressed) but she knew by my tone there was a problem.
I tossed my bag on the ailse chair but she had already seen it, i took my coat off and placed it on her seat saying "Quick..put your belt on" but I knew she wasnt going to sit down.
I quickly explained to the hostess that she was autistic and could she please bring me a child harness as sitting on my knee was the only option..by this time we are on the bloody runway ready to take off.
NO they insisted, if she was not sat in her own seat they would have to turn the plane back..shes been screaming her tits off the whole time BTW..the whole fookin plane is watching now and im getting daggers from everyone..i swear I could have happily went to jail for murder.
So I agreed that she was going to be forced into her chair..it took me, 1 steward and 2 stewardess to physically pin her down into the chair as the plane was gathering speed down the runway, we got her in and i clung like a limpet to her seatbelt buckle and the staff RAN to their seats as the plane took off.
She screamed like a devil possessed for most of the journey and the whole thing was highly embarrassing..but what I was surprised at was that after explaining that the seat was the problem to the hostess..she then went round the other passengers asking if someone would swap..and nobody would!!!
Bugger them..i was used to the screaming LOL

Next installment of the holiday from hell to follow ..

[tikay]

Suzanne, keep pouring it out, especially if it helps. It certainly helps many of us to realise how lucky we are - you deserve a Ladyship, you truly do. That flight must have been absolute hell for you, but you coped, & you are still coping. For that, much respect, because I don't think many of us could.

Keep writing, I think it helps.

[cia260895]

Yes that is the book it is a bit of a tough read,

I remember when Thomas was 3 and we took him to Disney for a week (family wedding) the flight over there was fine as it was late at night and he slept most of the way.Mind you his body clock was all over the place and what with the excitement of Disney and the wedding it self(attended by mickey and Minnie) he screamed throughout the ceremony because he couldn't stand with Mickey.then at the reception he knocked over an ornamental fish ($1550) ouch,plenty more tantrums later we decided to get to the airport early to check luggage in and they asked us if we would consider flying early but we would have to fly to JFK new York and change for B A club class to London.
They also offered $1000 each to go that way,result i said we'll take it(ex-wife said not a good idea) and if i wanted to do it i would have to look after thomas.OK i says no probs easy money + club class to London all was well until we touched down at JFK WOW the mother of all kick offs wasn't going to leave plane kicking and screaming as i held him while he lashed out at all that was around with every one staring and commenting (oh how i loved the disapproval looks and comments) all through the airport and in the club lounge he was a mare BA were telling us if he doesn't calm down we would b refused entry to the plane like he understood that Lil,they were really bad USA side any way we got onto the plane Remember we were in club class)and all 4 of us were seated apart i told the stewardess about thomas and she said there was nothing she could do until everyone had boarded.Thomas' seat was next to a businessman reading the FT I Just looked at him and said sorry she wont move us yet.Thomas sat in seat OK but when i went to get into my seat he created merry hell. i think every call button was pressed within 10 secs lol they quickly moved us then but 2 and 2 which meant i got thomas all 2 myself.eventually he settled down enough for then to start taxi onto runway,as we got onto runway i was looking out of window as we gathered speed i turned to point something to thomas and he was gone he had slipped his harness off and scarpered stewardess chased him down aisle he slipped through the curtain and went up to 1st class shouting and screaming i was told to stay seated they eventually struggled back with him and we managed to get him strapped in.the rest of the journey was just 1 long tantrum longest flight for me and all on board,

Was it worth it mmmmmmmm just lol

[suzanne]

Yes that is the book it is a bit of a tough read,

I remember when Thomas was 3 and we took him to Disney for a week (family wedding) the flight over there was fine as it was late at night and he slept most of the way.Mind you his body clock was all over the place and what with the excitement of Disney and the wedding it self(attended by mickey and Minnie) he screamed throughout the ceremony because he couldn't stand with Mickey.then at the reception he knocked over an ornamental fish ($1550) ouch,plenty more tantrums later we decided to get to the airport early to check luggage in and they asked us if we would consider flying early but we would have to fly to JFK new York and change for B A club class to London.
They also offered $1000 each to go that way,result i said we'll take it(ex-wife said not a good idea) and if i wanted to do it i would have to look after thomas.OK i says no probs easy money + club class to London all was well until we touched down at JFK WOW the mother of all kick offs wasn't going to leave plane kicking and screaming as i held him while he lashed out at all that was around with every one staring and commenting (oh how i loved the disapproval looks and comments) all through the airport and in the club lounge he was a mare BA were telling us if he doesn't calm down we would b refused entry to the plane like he understood that Lil,they were really bad USA side any way we got onto the plane Remember we were in club class)and all 4 of us were seated apart i told the stewardess about thomas and she said there was nothing she could do until everyone had boarded.Thomas' seat was next to a businessman reading the FT I Just looked at him and said sorry she wont move us yet.Thomas sat in seat OK but when i went to get into my seat he created merry hell. i think every call button was pressed within 10 secs lol they quickly moved us then but 2 and 2 which meant i got thomas all 2 myself.eventually he settled down enough for then to start taxi onto runway,as we got onto runway i was looking out of window as we gathered speed i turned to point something to thomas and he was gone he had slipped his harness off and scarpered stewardess chased him down aisle he slipped through the curtain and went up to 1st class shouting and screaming i was told to stay seated they eventually struggled back with him and we managed to get him strapped in.the rest of the journey was just 1 long tantrum longest flight for me and all on board,

Was it worth it mmmmmmmm just lol

AHHH your missus knew best then ;-) A to B with the least complicatitions possible and to hell with the cost..just not worth it... tho $1000 each is a hefty sum.

I was going to tell you all about the various problems that happened during that holiday which included her chasing a bouncing ball into the middle of the swimming pool fully clothed and sinking to the bottom. Im so glad no one had a camara to take a snap of me jumping in and push her to the side with my tits hanging out of my top 
She kicked off everytime we went to the restaurant to the stage after 3 days we ate out for the rest of the holiday. Interestingly though..I spoke to her a few years later when we found a way to communicate and I think it was a fishing display on the wall with seaweed/lobsters/crabs etc that scared her.

We met LOADS of the people who were on that plane in Salou during that holiday,they all knew who Megan was LOL and all of them said..dont worry about the trip back....easier said than done!!!

To cut a long story short...the plane home was delayed by about 8 hours, it was blatantly obvious that the staff had been pre-warned, im sure they were ready to kick us off at the first sign of trouble but she was as good as gold :-)

We arrived in Bristol about 6am and I was seriously stressed because it had been a long night and I was desperate for a ciggie, I also needed to get some ££s to pay for the taxi home, so my mum went to book a taxi as I stood in the cash machine line...next thing all hell broke loose.. Megan had kicked this boy, he kicked her back and she just flew at him (he was about 11/12)..his mother is screaming at me telling me to get my demented child under control and I swear I tried to reason with her..I really did..I explained she was autistic and apologised but she followed me outside to the taxi rank shouting and screaming that my daughter should be locked up..my mother was loading the bags into the taxi and i told the kids to get in, I apologized once more then walked towards the taxi.
Next thing I am flying backwards..she picked the wrong day to pick a fight is all I can say.

I didnt get that ciggie till 45 mins later when i got home.

Anyway enough of the doom and gloom......its all in the past and its CHRISTMAS!!

Next year I hope will be better but meanwhile I will find out how to set up a blog site :-)

[cia260895]

yah too true itssssssssssssssssssssss christmas and just think hun no one else post boring threads about normal childrens lifes lol thomas escaped from challengers (have you heard about them?) the other week some boy laughed at him so he scaled the fence and toodleed off home  all on his own lol

so for all the kids HAPPY XMAS !!!!!!!!!!!!!!!

[suzanne]

Thought I would give this an update.

I dont want to go into detail as to what happened after Christmas but a brief summary is that I demanded that she either be transfered to another school or the teacher that she didnt like be kept away from her.

The school agreed to a trial period when Megan would not cross paths with this teacher (poor bloke) and it WORKED..she was back to her old self after a few weeks and all was calm. After the month trial it was suggested that with some expert help he should be re-introduced into her classroom. She was forewarned that he would be teaching the class for the last 30 mins of the day. As the time got closer she went into complete panic and FINALLY they could see that she wasnt just playing up..she turned pure white to the stage she nearly pass out.

Anyway..to cut a long story short.

The damage had been already done, the local mainstream school she wants to go to where her friends go has "concerns" and dont feel they can give her what she needs (what a crock).

So she is now going to a special school..how cruel to let her think and believe she was "normal" and then take all that away.

Funny thing is...I insisted on her going to this school just outside of Bath which specialises in autistic kids and was told by other parents who have battled long and hard that there was "no chance" of me getting her in there as the waiting list was huge. I found out today (yesterday) that she is in.

I should be pleased but I have this nagging feeling that she should have been there from the start.

Its hard to put into words what living with autistic children is like, as a parent you bond and connect and see the world as they do because you have to!! If you dont ...there is nothing left.

Its a sad lonely world they live in.

[Claw75]

Sorry to hear things didn't work out quite as you wanted, but hopefully it'll be onwards and upwards for your daughter once she starts the new school x

[madasahatstand]

Suzanne

Well done for sticking with it and even though the kids world might by lonely at times, you are there to brighten in up each day. Keep the faith xx

[taximan007]

Suzanne

Well done for sticking with it and even though the kids world might by lonely at times, you are there to brighten in up each day. Keep the faith xx

 

[cia260895]

And when they are all fast asleep there all the same...awwww bless em