Reece goes away for Christmas. Again.

[suzanne]

He has a wee face that you just want to cup in your hands and smother with kisses and probably get a YUK!! in responce LOL

Thanks for the pics xx

[The_nun]

A little update,

The little fella is doing good apart from a couple of things,  a, he still has not rid himself of the line infection that he has had since Dec 24th, at the moment we are trying a new (to Reece) antibiotic. as said previous, line infections are potentally life threatning. B, one of his rubber tubes that enters his bowel is leaking constantly, his surgeon is away this week so we need to see him on his return to determin what needs to be done. Apart from this he is of great spirits. Last week his surgoen told us that he is very close to the big op, but has not told us how close. He is up to holding his milk in for 2hr 20 mins so by the time one milk comes out the next has to go in.

Last week we took him to the National Railway Museum for the Thomas Tank day out, he loved it. Photos to follow toninght or tomorrow if time.

[celtic]

Still thinking about you all Maureen.

Best Wishes

Vince

[tikay]

Wonderful news Maureen, thank you. Please continue to keep us updated.

Thinking of you & yours, as always.

[Claw75]

glad to hear things are progressing.  Will speak to you tonight no doubt xxx

[The_nun]

Just noticed I never put the photo's on last time I said I would so will attempt that before I go to work.

Update Time.

Reece has been doing remarkably well enduring the the pain that he sometimes suffers whilst we stretch his bowel. We have got it to 120 mil but now only 3 times a day, each time holding it in for 2 1/2 hrs each time. Recently, whilst I was changing his dressings ( which causes him a hell of a lot of discomfort and of which has to be done up to 7 times a day, depending on how much it is leaking) one of the tubes came out, my only option was to reinsert it back in immediately, so with Darren and Great Grandad John (Darren's dad) holding him down I eventually did it. I must have gone on auto pilot as when it is one of your own it hurts you as well as the child, but I succeeded and after,  shook like hell and cried. Reece slept for a while after as it took it out of him too. The holes where the tubes go into Reece have never healed proporly due to them always being moist, so they tend to swell and bleed a lot but he carries on regardless.

His humour is second to none, only the other day he was nibbling on sweets with his Grandad he said " would you like a sweetie Grandma ", " no " I relied, " I don't eat sweeties do I Reece". To which his reply came back " Do you just eat pies Grandma".

Anyway, yesterday we were told that his BIG operation has been pencilled in for the 23rd of this month. This is when we will now how well the bowel has reacted to all of this. It will be a very long op. They intend to take out the bowel cut the part that we have been stretching in two and make it twice as long, then reconnect it to the part that has been cut off for the stretching process. Bowels are funny organs, they don't like being touched they react differently than other organs do.

This op is going to cause the little man a tremendous amount of pain, we are not too sure how long he will be in hossy for but do recall Mr Morobito saying anything up to 6 months, but I may be mistaken as that was before his last op.

So for everyone concerned the next few weeks leading into months are going to be very stressful, but my main aim is make him as comfortable as possible.

Maureen.xx

[tikay]

You must be positive about the Op Maureen - it's Reece's big chance. But the worry that Darren, Stacey & yourself are carrying must be immense.

He's a very brave lad, & I'm sure he will cope better than the rest of you.

Please try & keep us informed.

[Eck]

Thanks for the update Maureen, hope it all goes well.

Best wishes to you all

[RED-DOG]

Thinking of you all, as always.

[The_nun]

Photo's added..

[Claw75]

Hope everything goes well over the next few weeks and months Maureen - Reece is such a trooper.

Lovely photos too xx

[littlemissC]

really lovely pics

all my love to you,darren and your whole family

FRAN  xxx

[Karabiner]

My thoughts and hopes are with you and that brave little man.

[Robert HM]

Good luck xxx

[Graham C]

All the best