Reece goes away for Christmas. Again.

[taximan007]

If I never ever get another Christmas present, this one is still more than enough.

Merry Christmas Reecey boy, and watch out! I like bacon and eggs too....

[ripple11]

Great news and lovely pictures

[Robert HM]

Great news and lovely pictures

This, big time

[Kev B]

Wonderful pictures. Happy Christmas to you all. I like my bacon well done BTW. 

[Laxie]

{{{{{HUGS}}}}}

[Claw75]

just fantastic!  love and hugs to all of you xxx

[suzanne]

The wee man has come a long way and its fantastic to see him opening his pressies at home after all he has been through.

Hugs and Kisses Reece xoxoxoxoxox

[Harmony26]

This is great news to hear and it is so lovely to see these photos. 

WD to all, especially young Reece.

Love,

B&H xxx

[The_nun]

Time for an update I reckon.

I really wish I was writing this full of enthusiasm and optimism but I am not, I actually feel quite worried and anxious again, but then I really should be used to it by now.

Once again the new year seems to have started out as a roller coaster for Reece. He has gradually been losing weight until over the last 2 weeks we have seen him as low as 10.6 k which is not good. At one stage last week when we rushed him in he got to a low point of not even having the strength to sit up and looks so very very thin that all his bones show. He had a bolus infusion of saline over 10 Min's to rehydrate him then when onto intravenous through his central line as his veins are very tiny. This has happened twice over the last 9 days, he dehydrates real quick. His potassium levels are also low which is not uncommon with his condition I understand.

We reintroduced milk feeds which go into his Gastrostomy for 5 hours from 6 while 11pm via a pump, we do them this late so that they hopefully do not interfear with his appetite. He eats a massive breaky but as the day goes on he tends to graze. It is as though he is not absorbing the food or the milk. He still has not had TPN since Dec 10 and it is the last thing we want to go back to. He has been home since Sunday morning and stays with us. I am on earlies this week so Stacey stays on this shift to take care of him in the mornings, this morning when I got up at 4am he was looking drawn again so Darren and Stacey took him over to Antonino to get him checked out. We may have to re think his diet again. He really has got to start putting weight on.

Wish it was more positive folks but there it is.

[Robert HM]

Thanks for the update, sorry it wasn't more rosy. x

[Claw75]

thoughts are with you all - I do hope a diet can be found soon that suits Reece x

[tikay]

That's a big worry Maureen.

On past form, he'll confound everyone & soon resume his recovery.

He will.

x

[The_nun]

Thanks Tony,

Seems my heads been up my a** again, just caught up on the blonde situ. x

[tikay]

Thanks Tony,

Seems my heads been up my a** again, just caught up on the blonde situ. x

You just look after the lad, as you always do, & keep us updated. All things are relative.

blonde will be just fine, so will Reece.

[pokerram]

best wishes with you all . keep ur headfs up and keep battling im sure reece will