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Author Topic: Reece goes away for Christmas. Again.  (Read 302522 times)
ripple11
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« Reply #1875 on: July 14, 2011, 09:02:24 PM »

Just fantastic, so pleased for all of you.

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Laxie
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« Reply #1876 on: July 14, 2011, 09:09:48 PM »

What a relief!!!  Over the moon for all of you.  xx
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« Reply #1877 on: July 14, 2011, 09:28:16 PM »

Sooooo so so pleased for you all. The most amazing little man in the world does it again.
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technolog
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« Reply #1878 on: July 14, 2011, 10:50:14 PM »

Fantastic news Maureen. Enjoyed looking at the pics of the holiday too. Reece looks just like any other lad now, to me at least xx
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« Reply #1879 on: July 15, 2011, 07:21:41 PM »

So happy 4 u all   best wishes as always xxxxxxx
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« Reply #1880 on: July 19, 2011, 05:29:45 PM »

We went to Reeces sports day today. He did really well although he was more interested in sign languageing to us  can I come to your house.  Thing to upload s pic off my phoenix but it isn't having it.

Also Darren birthday today  and our 20th wedding anniversary tomorrow.
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« Reply #1881 on: July 20, 2011, 11:28:21 AM »

Congrats on the anniversary.
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« Reply #1882 on: July 20, 2011, 12:07:34 PM »

Belated Happy Birthday to Darren and many congrats on the anniversary!  Here's to many more happy years.  xx
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« Reply #1883 on: July 22, 2011, 10:49:16 PM »

Wow!!! Pretty stunning news for a first pop through in a long time!! Very very very happy for the holiday success and the progress. Smiley
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« Reply #1884 on: July 28, 2011, 08:38:03 PM »

 

WHAT SUPERB NEWS,

and stunning pics looks like you all had a fab time

 so pleased for all of you x
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« Reply #1885 on: September 05, 2011, 09:30:47 AM »

We reach a milestone tomorrow.


The day has finally arrived for Reece to have his line out. Timing isn't too good as he returns to school but at least his first day in year 9 will be the start of a new era for him.

He is very excited as well as being a little apprehensive, after all it has been part of him since birth, it is like part of his body to him.

All he is saying " this means I can go swimming for as long as I want with Grandad". then a great big cheesy smile appears on his face.

 
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« Reply #1886 on: September 05, 2011, 09:41:06 AM »

Bad timing? I don't think so. Greatest day of his life, Maureen.

Congrats to you all, what a journey it's been.

He'll grow up to be some man, he really will.

xx
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« Reply #1887 on: September 05, 2011, 09:43:50 AM »

Having a brain freeze morning here.  Pretty sure you've already told me all this, so apologies.  What does this mean long term for him?  Is there a risk he'd ever have to go back to it?  How soon before he can jump in that pool?

Keeping fingers, toes and everything else crossed for him.  xx
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« Reply #1888 on: September 05, 2011, 09:46:33 AM »

Bad timing? I don't think so. Greatest day of his life, Maureen.

Congrats to you all, what a journey it's been.

He'll grow up to be some man, he really will.

xx

Cheers Tony. xx
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« Reply #1889 on: September 05, 2011, 09:51:03 AM »

Having a brain freeze morning here.  Pretty sure you've already told me all this, so apologies.  What does this mean long term for him?  Is there a risk he'd ever have to go back to it?  How soon before he can jump in that pool?

Keeping fingers, toes and everything else crossed for him.  xx

We were told back in July ( i think it was) that his line was coming out but they are short of anesthetists at the moment so we have had to wait. He swims now but only for half hour a time then it's straight to the bedroom to have all his dressing changed, such a pain for him as it has to be kept as sterile as possible and pulling sticky dressings of all the time for six whole years causes some soreness I can tell you. Some times it has torn some of his skin and it then bleeds but still more has to be put back on over it. So you see how much this will change his life. Plus no more high risk life threatening line infections.

We dont even want to think about if he ever has to go back on, that is just way to bad a thing to think of at such an exciting time as this. This should be it end of..no more TPN etc.


He will remain on gastro feeds into his belly for 10 - 12 hours per night but like i said before these are not life threatening just another way of pumping more easily absorbed calories into him whilst he sleeps. 

« Last Edit: September 05, 2011, 09:53:40 AM by The_nun » Logged

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